What is the "The House of Hearts"?
The Maine Affiliate for HDSA/NE has created this campaign to raise money to benefitresearch & awareness of Huntington's Disease for the Huntington's Disease Society of America. Your cost is $1.00 and the cost of a postage stamp.Create a heart & use any paper you have around the house.
Paper platesCrayonsWriting paper MarkersConstruction paper& Sequins & ribbonsLeft over material piecesPaper cut-outsFoam sheets...... Buttons & bows.....Wrapping PaperGlitter GlueBe Creative & Have Fun......Who can take part in creating a heart?
FamilyFriends Have a family get together and make heartsSchoolsGet together with friends and make heartsNursing Homes Have your children make heartsDay Cares.......Individual civic group ClubsAfter I make the heart what do I do with it?
Send it to the address below along with $1.00A house has been designated to display all the hearts.Once hearts are received they will be displayed all over the walls.Pictures will be uploaded to this site so that all may see your heart proudly displayed inthe "House of Hearts." When can I start making my heart and how long will I have to finish my heart?
As soon as you are able to access this page you can make your heart.The "House of Hearts" campaign will run from October 15, 2008 throughFebruary 28, 2009Where does all the money raised go?
All money raised is to benefit the Huntington's Disease Society of America for research & awareness of Huntington's Disease.Once your heart is complete mail it along with $1.00 to:
HDSA/Maine Affiliate 6 Ginger LaneSaco, ME 04072What is Huntington's Disease? (HD)
A neurological inherited brain disorder that kills brain cells over a period of time. As the brain cells are dying the affected person will lose cognitive abilities, speech will be slurred, gait will be unsteady, uncontrollable movements will be present & psychosis and/or depression can be present. All symptoms will progress usually over a period of 10-15 years from the onset of symptoms. There is currently no cure for this disease. Go to Huntington's Disease Society of America to learn more about this disease and about HDSA.
How do you get Huntington's Disease?
Any person that has a parent with the disease has a 50% chance of inheriting it. Huntington's Disease does not discriminate according to age, nationality, gender or race. Known cases have been recorded as young as age 2 (JHD) Juvenile HD or as old as age 70.
What is an Affiliate?
A group of caring individuals dedicated to finding the cure for HD.
Giving their time and energy advocating, raising awareness & funds for HD.
Go to www.hdsa-ne.org and click on Maine to learn more
about the Maine Affiliate.
HDSA Mission Statement
The Society is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families.
The purposes for which the Society is formed and shall operate are:
To promote and support research and medical efforts to eradicate Huntington's Disease.To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.To educate the public and health professionals about Huntington's Disease.HDSA is a none profit organization.Please be sure to leave us a note in our guest book and thank
you for your participation and giving your heart to HD. HOUSE OF HEARTS
for HD
The Maine Affiliate
HDSA/NE
Raima Fernald
Maine Affiliate Chair Person
Huntington's Disease Society of America
New England Region
6 Courthouse Lane Unit 12
Chelmsford, MA 01824
(888) 554-8102
Virginia Goolkasian/Regional Director
You are visitor number:
A Special Thank you to: The Holy Cross Lutheran School Cypress, CA created 168 Hearts
Keep scrolling down to see the pictures of the House of Hearts
(If paying by check or money order please make it payable to HDSA/Maine Affiliate.)
For more questions regarding this campaign
enter in Hearts 4 HD in your subject box.
When the program is over some of the hearts will be used in several framed poster boards. The poster boards will be proudly displayed on the walls of the group home in Portland, Maine, which is home to two young men who suffer with Huntington's disease. These two young men can have the enjoyment of knowing that people do care about them.
Thank you from the Maine Affiliate for taking your time to make a heart for HD.
The organized efforts of PHI KAPPA SIGMA in corporation with PHI MU, ALPHA XI DELTA, SIGMA IOTA SIGMA, AND KAPPA IOTA have raised $105.00 and created 105 hearts for the House of Hearts 4 HD
A special thank you to Shane & Meghan for making this beautiful blanket for the House of Hearts
